World AIDS Day
Today is “World AIDS Day”.
Bill’s personal AIDS time line...
Early 1980’s...
We are in San Francisco. I know many people with HIV. There is no help available except for a couple of hospitals with AIDS wards. Mainly, we take care of ourselves. Many of us die at home surrounded by friends. This was the case with most of my friends.
We heard nothing from the Federal Government. No help was available. A handful of drug companies were coming up with new drugs. The life expectancy was 6 months to 2 years. The mortality rate was 100%.
I was in a choir with 42 other gay men. Today, they are all dead except for the remaining 2 of us.
Mid 1980’s...
Death is all around me. I walk through The Castro, our current neighborhood, and I’m told that yet another friend passed away. Hope is gone. Why doesn’t our government help? Why does our President say nothing about AIDS?
1986...
My closest friend Stanley, told me one morning after we saw each other at a Sunday brunch that he had “it”. He came over to our table, gave me a hug, and whispered into my ear, “I have it.” My heart sank. He said nothing more.
1987...
I saw Stan a couple of days before we left San Francisco. I knew it was the last time I would see him. I made sure that I said the words, “I love you.” He started crying and said, “I love you too.” Then, we cried together. I left two days later for Connecticut, for Kent’s new job. Two months after living here, a friend calls me to let me know of Stan’s passing. He fought so hard. He was very brave.
1988...
I still care. I sign up to work as a “buddy” with the AIDS Project Hartford. We did a lot of good work. The clientele were mostly gay men. Later, we started seeing other minorities and IV drug users coming to us for help.
Today...
World AIDS Day is like Christmas. It comes around once a year and preaches caring, love, forgiveness, kindness..... but nothing ever changes. It exists so that we can go away feeling good that at least once a year we thought about AIDS, just like once a year we buy a Christmas tree, dress it up with gaudy ornaments, and somehow convince ourselves that we have found love, compassion, and understanding.
I don’t think of AIDS anymore. My friends are dead. I’m alive. My life goes on without them. People didn’t care then that we were dying, and they don’t care now. They claim to care about the orphaned children that are parent-less because of AIDS. They claim to care about the fact that half of all new AIDS infections are coming from the black community. They still care little that gay people are getting this disease, and many, despite all the evidence, are still calling AIDS “largely a gay disease”.
On my way to work this morning, I heard an evangelical preacher talk about how the evangelical community has been late in coming to the table to help those with AIDS (you think?). He said that they thought it was a “gay disease”, and now that they see that it’s killing heterosexuals in Africa and America, they’ve suddenly decided that they should have helped more (not saying much), kind of like how President Reagan should have helped more when people in my community were pleading with the Federal Government to help us with funding in the 1980’s as people in my community were dropping like flies, and while comedians such as Bob Hope were popping AIDS jokes just for laughs.
But now that others are catching AIDS outside the gay community, this evangelical preacher is now saying that he is “sorry” for not bringing the “love of Christ” to us (gays) sooner. Preacher, you are 20 fucking years too late! GO AWAY! Preach your road-side crap to someone who gives a shit about what you have to say -- someone who hasn’t had to hold friends as they took their last breath as you were preaching that AIDS was punishment from your loving, caring, God.
AIDS burnout. Now, I’m supposed to stop everything and care again, because the world has finally caught up to what AIDS is.
In 25 years, nothing has changed. Except now, their children are getting AIDS.
Can someone explain to me again why now, at this stage in the game, that I’m supposed to care? When my friends were dying, no one cared. I’m simply following the example.
Post-publishing note - 12:20p.m.
This entry makes it sound like I’m a very hardened person inside. I’m actually not. I’m actually a very compassionate person. But, I hate fake people and I hate fake promises. And, I really hate fake people who hide behind fake promises condemning people they don’t even know based on what they perceive to be the “Love of Jesus Christ”.
I suppose my experience could be compared to Vietnam era troops. They went to fight for their country against an enemy that we could not defeat. When they came home, they were spit upon and called “baby killers”. And we wonder why so many of them are bitter and disillusioned.
I’ve been through a battle. The casualty rate was high. We are losing the war on AIDS and people are still calling it a “gay disease”. It’s sad and pathetic. Many of us had no home to come home to because many of us were disowned by our families by the same mentality that damns us to Hell by the same evangelicals, and Christian community at large. Many people stated at the time that they “didn’t want their tax dollars to fight a disease that was ridding society of queers”. Indeed, I remember one “Christian” stating that Christians should “kill a queer for Christ.”
This is what it was like for me and so many others like me. I don’t claim to carry the cross on this issue. So many people in the gay community went through this. I honestly can’t tell you which was worse: having my friends die of AIDS, or having people not care that we were dying of AIDS.
People in the Christian community love to state that gay people get AIDS because they are so promiscuous. I will undoubtedly be accused of stereotyping and lumping all Christians together, just as they have lumped all gay people together.
My friend Stan used to lament that he and his partner had no civil recognition of their partnership. In Tuscon, they had a “civil union.” It was basically a few friends who gathered one afternoon, and listened to the two of them publicly stating their relationship to each other. But, it was given no consideration. It had no legal weight and was not recognized. In one conversation with him, we talked of marriage. This was long before anyone was talking about marriage for gay couples. He told me, “Marriage is something that people like us will never have.” It was the tone in his voice and the way he said it that I remember. He said it in such a way that I could tell he had little motivation to put value in a relationship that no one else put value in. There was no support.
This issue has come full circle in the Christian community. They used to say that if we could just be in relationships and be monogamous, we wouldn’t get AIDS. Today, when so many in the gay community are trying to achieve marriage - something that could cut down on AIDS transmission if people give it a chance - the Christian community is doing everything in it’s power to keep us down - to keep us in a place where we put no value on ourselves, or our relationships.
We must not let that happen.





Bill, your timeline is very good and I thought the same thing about it being condensed when I read it. There are many unbelievable stories.
My personal timeline starts in 1980 when I read about the "gay cancer" in my local newspaper. I remember where I was and exactly what I was doing. I was walking to art class and the article simply stunned me. I never lost interest in the story and as it grew and grew, I knew from the beginning that the world was going to experience something terrible. I think it was instinct. I'm pretty sure that preoccupation saved my life (now I know it is related to my OCD).
The most heartbreaking thing for me was watching how my best friend was treated -- he had the misfortune of being both black in America and contracting AIDS. I've written here before about taking him to Cedars-Sinai in very bad shape and returning the next day to find that he had been transported to King/Drew Medical Center -- a filthy dump, miles away. He was exposed to Hepatitis while he was there and that's what finally killed him. What a horrible way to die. He was tossed out of a "white" hospital and taken to a filthy death house for poor minorities.
It is unbelievable that things like that happen in this country. I've never been sent away from a hospital. But, I'm an upper-middleclass white man.
Ugh! Now you've got me started...
Of course you can use this in your research. It's on the web and is open material. But this is only the tip of the iceberg. This is a very condensed version of all that happened.
I could tell you stories that you wouldn't believe. Up to now, you are the only one who has shown interest, Fiona. My friends, these people, are dead. And everyone else has gone on about their business as though they never existed. I suppose that's why I rarely talk of AIDS anymore.
But I remember every one of them. Every argument I had with them, every smile, every embrace, and the richness they brought to my life. They live on as long as I live on.
The way you wrote this piece is fantastic, the timeline really makes you think. I wonder if i could have your permission to use it in my research. when I did my PHD two years ago i looked at the social and psychological effects of living with HIV in gay men. It was the most hard hitting experience i have ever had in my life. I interviwed 64 men aged between 26 and 65 years of age who were living with this condition. Many like your self had lost almost every friend. some had lost partners and soul mates. What hit me bill was the discrimination these fantastic people live with on a day to day basis. discrimination from family, so called friends, employers, even doctors and nurses. One man took his 75 year old mother to a medical appointment. she was very supportive but being an older woman had very little knowledge. She asked the doctor if she was at risk from HIV too as she was shareing the same bathroom as her son. he turned to her and not unless you like to take it up the back passage as your son obviously does.The man was sobbing when he told me this. He was so humiliated in front of his mother and his mother was treated with utter disrepsect. There were many many more examples too. One of my friends is also HIV + and has suffered a lot of discrimination in the past. I hope world AIDS day made a few people think this year about those who live with HIV and AIDS in Britain are treated.
I know. I used to be that nurse that cared for many of them... for a long long time. I know exactly what they go through. And the most exhausting thing about it is the feeling that no one really cares - other than the people you are helping who have AIDS... the ones who really matter. For our government, and many Americans, people who have HIV/AIDS are disposable people. They are mostly minorities.
The Human Rights Campaign just sent me an email concerning the 25th anniversary of the recognition of AIDS in this country. This is an excerpt:
World AIDS Day is like Christmas to the general population and to our government. It is only thought of once a year. That would be ok I suppose, if the other 364 days of the year our government was actually doing something constructive to help those with this disease.
To me, someone who has worked with people with HIV/AIDS for years, and I suppose those in the health care profession working with people with HIV/AIDS, the apathy we are up against by the general population and our government is the most exhausting part of all of it.
Working with my clients was a privilege and some of the most cherished memories that I hold today.
World AIDS Day is like Christmas.
Wow. My boss just said the exact same thing today when someone asked her why our hospital doesn't recognize World AIDS Day by running a newspaper ad or putting a red ribbon on our web site. She added, "For healthcare workers, every day is AIDS Day."
So, if you think you have AIDS burnout, think about the nurses and doctors who have to deal with this every single day. I don't know how they keep from going nuts.